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Author
Pub. Date
[2019]
Physical Desc
x, 83 pages : illustrations ; 23 cm.
Description
A knowledgeable handbook with a patient's perspective for those afflicted with the incurable disease known as Alpha-1 Antitrypsin deficiency (A1AD).Alpha-1 Antitrypsin deficiency (A1AD) is a rare genetic, incurable disease which causes the liver to not produce enough of a certain protein that protects and keeps the lungs functional. 100,000 people in the United States have A1AD and 19 million more are carriers for the disease. Since it's so rare,...
Author
Pub. Date
2021.
Physical Desc
370 pages ; 22 cm.
Description
"Vanessa lives life on her own terms--one day at a time, every day to its fullest. She can't afford to think about whether she has the same fatal genetic condition as her older sister. After all, she has way too much to do, traveling the globe and showing millions of YouTube followers the joy in seizing every moment. But lately, life has been anything but pure joy, and travel has come to an abrupt halt. After her younger [half]-sister drops off an...
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